TO raise public awareness about thalassaemia and funds to support thalassaemics in Penang, a charity event known as ‘Let’s Walk for Thalassaemia 2024’ will be held on Sept 8.
The charity event is jointly organised by the Penang Thalassaemia Society and Penang Island City Council (MBPP).
The fourth edition of the 4km event will take place at Penang Youth Park at 7am.
Penang Thalassaemia Society president Noorasyikin Md Saad, who is also the organising chairperson, said the main objective of the event is to increase awareness of thalassaemia.
“In Malaysia, approximately five per cent of the population carries this genetic disorder, which means one in 20 individuals is a carrier.
“The Penang Thalassaemia Society has been one of the earliest organisations in Malaysia to offer oral chelation therapy and white blood cell filters for thalassaemia patients.
“Thus, through this charity event, we want to focus on public awareness cum fundraising campaign by the society to continue its objectives in caring, treating and improving the welfare of children with thalassaemia in Penang.
“Part of the funds raised will also be used to organise medical camps and workshops for both medical staff and thalassaemics,” Noorasyikin told a press conference at the City Stadium in Lorong Kulit today, where the upcoming event was announced.
Also present was MBPP assistant administrative officer Mokagathi Ganesan.
According to Noorasyikin, they expect around 1,000 participants to join the charity event.
“As of now, we already have around 700 participants who have registered. Thus, we would like to encourage the public to support us by taking part in this event. The registration fee is RM35 and it is free for children below the age of 12,” she said.
To register or for more details, interested individuals can contact Ms Lily Boey at 016-421 6839.
In addition to the 4km walk, the charity event will feature various programmes, including talks and exhibitions on thalassaemia, health checkups, a zumba session and a lucky draw.
Thalassaemia is an inherited blood disorder resulting from insufficient production of the protein haemoglobin, a critical component of red blood cells. Because of that, regular blood transfusion is needed to maintain healthy haemoglobin levels.
To reduce excessive blood iron levels from regular blood transfusion, thalassaemics need to be on daily medications which are given either orally or as injections. If left untreated or inadequately treated, thalassaemia can lead to serious complications.
Story by Riadz Akmal
Pix by Alissala Thian